HERON Chikaskia release introduces HERON DUA to REDCap & KU ADC data
When you request data from HERON you can receive the data via a REDCap project. The data will be pivoted into a user-friendly format and available in REDCap CRFs. The data will reside on REDCap servers cutting down the use of email in sharing data.
Data from University of Kansas Alzheimer's Disease Center(KU ADC) REDCap project is now part of HERON. This project has a richly characterized cohort of over 300 Alzheimer's patients. You can access this data only if you have the permissions to the related REDCap project. Please contact Dr.Jeff Burns (jburns2@…) if you would like to look at these patients in HERON.
HERON is now on i2b2 v1.6.09. Queries including concepts with symbols like < are now working.
General fixes in this release include:
- HERON databases are now running on a newer version of Oracle.
- UHC data is now under the folder University HealthSystem Consortium
- HERON help button is functional again.
Note: The latest University HealthSystems Consortium (UHC) is current through June 2013.
This month, our tour of rivers and lakes in Kansas honors Chikaskia.
The HERON repository contains approximately 1 billion real observations from the hospital, clinics, and research systems:
Observation | Patients | Source | Go-Live | Snapshot | Issues | |
---|---|---|---|---|---|---|
Allergy | 442K | 210K | ||||
KUH/O2/Epic | Nov 2007 | August 2013 | various* | |||
Cancer Cases | 10.2M | 69.7K | ||||
KUH Cancer Registry | 1950s | August 2013 | labels* | |||
Demographics | 19.0M | 2.00M | ||||
KUH Billing (O2 via SMS) | 1980s | August 2013 | various* | |||
UKP Billing | 2000 | August 2013 | ||||
18.8K | 18.8K | Frontiers participant registry | Jun 2009 | August 2013 | ||
189.9K | 189.9K | Social Security Death Index | 1962 | August 2013 | ||
Diagnoses (IDC9) | 50M | 701K | ||||
KUH/O2/Epic | Nov 2007 | August 2013 | various* | |||
UKP Billing | 2000 | August 2013 | ||||
University HealthSystem Consortium (UHC) | Q4 2008 | June 2013 | ||||
History | 19.4M | 337K | ||||
KUH/O2/Epic | Nov 2007 | August 2013 | ||||
Lab Results | 93M | 318K | ||||
KUH/O2/Epic | 2003 | August 2013 | various* | |||
Medications | 102M | 346K | ||||
KUH/O2/Epic (Organized by VA Class) | Nov 2007 | August 2013 | various* | |||
Microbiology | 2.71M | 24.2K | ||||
KUH/O2/Epic | 2003 (?) | August 2013 | various* | |||
Nursing Observations | 659M | ? | ||||
KUH/O2/Epic | Nov 2007 | August 2013 | various* | |||
Procedure Orders | 132M | 482K | ||||
KUH/O2/Epic | 2003 (?) | August 2013 | various* | |||
Procedures (CPT) | 11.1M | 608K | ||||
UKP Billing | 2000 | August 2013 | ||||
REDCap | 266K | 4.51K | ||||
REDCap | July 2011 | August 2013 | ||||
Reports/Notes | 46.7M | 322K | ||||
KUH/O2/Epic | ? | August 2013 | ||||
Specimens | 76.6K | 5.91K | ||||
KUMC Biospecimen Repository | ? | August 2013 | ||||
Visit Details | 33.7M | 586K | ||||
KUH/O2/Epic | Nov 2007 | August 2013 | ||||
Hospital Quality Metrics | 5.60M | 77.3K | ||||
University HealthSystem Consortium (UHC) | Q4 2008 | June 2013 | ||||
All | 1.28B |
Notice
Some material in the UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.
Beta Disclaimer
We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.
Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.
We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.
Various Issues Still Apply
Keep in mind the issues noted in the original HERON beta notice, including:
- date shifting, part of our DeIdentificationStrategy
- age searching (#158)
Enhancements and Problems/Defects/Issues Addressed in this Release
Due to in-progress trac access policy issues, this section may be blank for a time.
- #1833
- Searching for some concepts (e.g. VANCOMYCIN(<5KG/NICU) INJ 5MG/ML) results in error
- #2186
- visit-oriented REDCap CRFs for HERON Data Use Requests (DUA)
- #2227
- Delete Concept in I2B2 web app naively deletes the first occurrence of the concept, not the one selected
- #2250
- dragging ChrisMackaySolidTumorProgressed from shared folder to query tool hangs
Outstanding Problems/Defects/Issues
Ticket | Summary | Keywords |
---|---|---|
#2301 | constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics | public-web wrong-results training |
#2617 | Saved searches not updated in REDCap projects after Arkansas release | public-web redcap-to-heron |