Posts for the month of January 2014

KUMC receives PCORI award to lead Greater Plains Collaborative

The Greater Plains Collaborative award from the Patient-Centered Outcomes Research Institute (PCORI) provides $7 million for a project that will establish a new network of nine medical centers in seven states committed to building a data set from electronic medical records that will be used to contribute to new research in the fields of breast cancer, obesity and amyotrophic lateral sclerosis (also known as ALS, or Lou Gehrig's disease).

The principal investigator of the project is Russ Waitman, director of medical informatics at KU Medical Center. The HERON technology developed by the medical informatics team plays a prominent role.

Further reading:

HERON Lovewell improves navigation and fixes Frontiers patient count issue

HERON Lovewell release facilitates navigation by introducing changes to the abridged Cancer Cases Identifier structure. Date ranges are added to AJCC concepts, and folders are rearranged into an intuitive order. The issue of inaccurate Frontiers Research Participant Registry patient counts ((see #2451)) is resolved. Searches will return the correct patient count when searching with the Frontiers Research Participant Registry concept.

HERON Lovewell Contents Summary

This month, our tour of rivers and lakes in Kansas honors Lovewell Lake.

The HERON repository contains approximately 1.3 billion real observations from the hospital, clinics, and research systems:

Observation Patients Source Go-Live Snapshot Issues
Allergy 468K 219K
KUH/O2/Epic Nov 2007 December 2013 various*
Cancer Cases 10.5M 71.6K
KUH Cancer Registry 1950s December 2013 labels*
Demographics 19.2M 2.02M
KUH Billing (O2 via SMS) 1980s December 2013 various*
UKP Billing 2000 December 2013
21.4K 21.4K Frontiers participant registry Jun 2009 December 2013 #2451
191.3K 191.3K Social Security Death Index 1962 December 2013
Diagnoses (IDC9) 54M 727K
KUH/O2/Epic Nov 2007 December 2013 various*
UKP Billing 2000 December 2013
University HealthSystem Consortium (UHC) Q4 2008 September 2013
History 22.5M 359K
KUH/O2/Epic Nov 2007 December 2013
Lab Results 132M 336K
KUH/O2/Epic 2003 December 2013 various*
Medications 109M 369K
KUH/O2/Epic (Organized by VA Class) Nov 2007 December 2013 various*
Microbiology 2.88M 25.7K
KUH/O2/Epic 2003 (?) December 2013 various*
Nursing Observations 706M ?
KUH/O2/Epic Nov 2007 December 2013 various*
Procedure Orders 143M 507K
KUH/O2/Epic 2003 (?) December 2013 various*
Procedures (CPT) 11.8M 624K
UKP Billing 2000 December 2013 #26
REDCap 867K 43.4K
REDCap July 2011 December 2013
Reports/Notes 52.7M 347K
KUH/O2/Epic ? December 2013
Specimens 93K 7.01K
KUMC Biospecimen Repository ? December 2013
Visit Details 37.4M 613K
KUH/O2/Epic Nov 2007 December 2013
Hospital Quality Metrics 5.89M 80.2K
University HealthSystem Consortium (UHC) Q4 2008 September 2013
All 1.3B


Some material in the UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues