KUMC receives PCORI award to lead Greater Plains Collaborative
The Greater Plains Collaborative award from the Patient-Centered Outcomes Research Institute (PCORI) provides $7 million for a project that will establish a new network of nine medical centers in seven states committed to building a data set from electronic medical records that will be used to contribute to new research in the fields of breast cancer, obesity and amyotrophic lateral sclerosis (also known as ALS, or Lou Gehrig's disease).
The principal investigator of the project is Russ Waitman, director of medical informatics at KU Medical Center. The HERON technology developed by the medical informatics team plays a prominent role.
Further reading:
HERON Lovewell improves navigation and fixes Frontiers patient count issue
HERON Lovewell release facilitates navigation by introducing changes to the abridged Cancer Cases Identifier structure. Date ranges are added to AJCC concepts, and folders are rearranged into an intuitive order. The issue of inaccurate Frontiers Research Participant Registry patient counts ((see #2451)) is resolved. Searches will return the correct patient count when searching with the Frontiers Research Participant Registry concept.
HERON Lovewell Contents Summary
This month, our tour of rivers and lakes in Kansas honors Lovewell Lake.
The HERON repository contains approximately 1.3 billion real observations from the hospital, clinics, and research systems:
Observation | Patients | Source | Go-Live | Snapshot | Issues | |
---|---|---|---|---|---|---|
Allergy | 468K | 219K | ||||
KUH/O2/Epic | Nov 2007 | December 2013 | various* | |||
Cancer Cases | 10.5M | 71.6K | ||||
KUH Cancer Registry | 1950s | December 2013 | labels* | |||
Demographics | 19.2M | 2.02M | ||||
KUH Billing (O2 via SMS) | 1980s | December 2013 | various* | |||
UKP Billing | 2000 | December 2013 | ||||
21.4K | 21.4K | Frontiers participant registry | Jun 2009 | December 2013 | #2451 | |
191.3K | 191.3K | Social Security Death Index | 1962 | December 2013 | ||
Diagnoses (IDC9) | 54M | 727K | ||||
KUH/O2/Epic | Nov 2007 | December 2013 | various* | |||
UKP Billing | 2000 | December 2013 | ||||
University HealthSystem Consortium (UHC) | Q4 2008 | September 2013 | ||||
History | 22.5M | 359K | ||||
KUH/O2/Epic | Nov 2007 | December 2013 | ||||
Lab Results | 132M | 336K | ||||
KUH/O2/Epic | 2003 | December 2013 | various* | |||
Medications | 109M | 369K | ||||
KUH/O2/Epic (Organized by VA Class) | Nov 2007 | December 2013 | various* | |||
Microbiology | 2.88M | 25.7K | ||||
KUH/O2/Epic | 2003 (?) | December 2013 | various* | |||
Nursing Observations | 706M | ? | ||||
KUH/O2/Epic | Nov 2007 | December 2013 | various* | |||
Procedure Orders | 143M | 507K | ||||
KUH/O2/Epic | 2003 (?) | December 2013 | various* | |||
Procedures (CPT) | 11.8M | 624K | ||||
UKP Billing | 2000 | December 2013 | #26 | |||
REDCap | 867K | 43.4K | ||||
REDCap | July 2011 | December 2013 | ||||
Reports/Notes | 52.7M | 347K | ||||
KUH/O2/Epic | ? | December 2013 | ||||
Specimens | 93K | 7.01K | ||||
KUMC Biospecimen Repository | ? | December 2013 | ||||
Visit Details | 37.4M | 613K | ||||
KUH/O2/Epic | Nov 2007 | December 2013 | ||||
Hospital Quality Metrics | 5.89M | 80.2K | ||||
University HealthSystem Consortium (UHC) | Q4 2008 | September 2013 | ||||
All | 1.3B |
Notice
Some material in the UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.
Beta Disclaimer
We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.
Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.
We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.
Various Issues Still Apply
Keep in mind the issues noted in the original HERON beta notice, including:
- date shifting, part of our DeIdentificationStrategy
- age searching (#158)
Enhancements and Problems/Defects/Issues Addressed in this Release
Due to in-progress trac access policy issues, this section may be blank for a time.
No results
Outstanding Problems/Defects/Issues
Ticket | Summary | Keywords |
---|---|---|
#2301 | constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics | public-web wrong-results training |
#2617 | Saved searches not updated in REDCap projects after Arkansas release | public-web redcap-to-heron |