Posts for the month of March 2016

HERON Paradise introduces study enrollment and trauma registry data

New data types in the HERON Paradise release include registry and study enrollment data.

  • Study enrollment information: Want to find out how many people in your patient set are already enrolled in a study at KUMC? Go to the Research Enrollment folder. You can search by status for patients actively enrolled, pre-enrolled and more. Additionally, you can search the status in a specific trial.
  • Trauma registry: Search for patients seen at the KU trauma department. This is the first phase for incorporating this registry into HERON, and future work will include incorporating the outstanding trauma registry fields.

This release includes enhancements to the tumor registry and diagnosis fields.

  • Labels added for site specific factors: Prior to this release, searching the CS Site Specific Factors within the tumor registry required an understanding of the SEER coding structure. This release replaces the numeric codes with text labels making it easier to search items such as ER positive breast cancer patients.
  • Medical History: Previously HERON included any diagnosis added to the medical history field. In this release, the medical history diagnosis is limited to only the most recent recording of medical history.

Save time submitting your next identified data request by searching for team members by your approved IRB number. Searching by IRB number as opposed to a team member name will avoid a request denial due to unauthorized team members listed on the data request.

Feedback on new data sources or enhancements are always welcome.

Need help with HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Paradise Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​Greater Plains Collaborative states. This month honors Paradise Lake in Wisconsin.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Observation Patients Source Go-Live Snapshot Issues
Alerts 23.7M 481K
KUH/O2/Epic Nov 2007 Feb 2016
Allergy 658K 290K
KUH/O2/Epic Nov 2007 Feb 2016 various*
Cancer Cases 18.5M 82.2K
KUH Cancer Registry 1950s Feb 2016 labels*
Cardiology Labs 28.8M 384K
KUH/O2/Epic Nov 2007 Feb 2016
Demographics 29.3M 2.18M
KUH Billing (O2 via SMS) 1980s Feb 2016 various*
UKP Billing 2000 Feb 2016
42.1K 42.1K Frontiers participant registry Jun 2009 Feb 2016
203.3K 203.3K Social Security Death Index 1962 Feb 2016
Diagnoses (IDC9, ICD10) 97M 881K
KUH/O2/Epic Nov 2007 Feb 2016 various*
UKP Billing 2000 Feb 2016
University HealthSystem Consortium (UHC) Q4 2008 Mar 2016
History 49.8M 519K
KUH/O2/Epic Nov 2007 Feb 2016
Lab Results 183M 423K
KUH/O2/Epic 2003 Feb 2016 various*
Medications 229M 527K
KUH/O2/Epic (Organized by VA Class) Nov 2007 Feb 2016 various*
Microbiology 4.33M 35.9K
KUH/O2/Epic 2003 (?) Feb 2016 various*
930K 144K Negative 2003 Feb 2016
15.1K 10.6K Positive 2003 Feb 2016
National Cardiovascular Data Registry 1.57M 13.2K
NCDR (?) Sep 2015
National Trauma Data Registry 11K 478
NTDS Apr 2015 June 2015
Nursing Observations 1.08B ?
KUH/O2/Epic Nov 2007 Feb 2016 various*
Procedure Orders 221M 650K
KUH/O2/Epic 2003 (?) Feb 2016 various*
Procedures (CPT) 16.3M 761K
UKP Billing 2000 Feb 2016
REDCap 1.68M 51.9K
REDCap July 2011 Feb 2016
Reports/Notes 111M 501K
KUH/O2/Epic ? Feb 2016
Specimens 137K 9.7K
KUMC Biospecimen Repository ? Jun 2015
Visit Details 107M 1.06M
KUH/O2/Epic Nov 2007 Feb 2016
Hospital Quality Metrics 9.2M 117K
University HealthSystem Consortium (UHC) Q4 2008 Mar 2016 various*
All 2.23B


Some material in the UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues