HERON Babcock includes data from the Cystic Fibrosis registry

HERON Babcock release includes the addition of data from KUMC entered into the Cystic Fibrosis registry. You may query on terms recorded in the registry along with information from a patient's medical record.

Another enhancement is the update of folder names to be easier to navigate. University HealthSystem? Consortium has changed their name to Vizient. Inpatient quality data can now be found in the folder titled "Vizient (formerly UHC)".

Need help with HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Babcock Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​Greater Plains Collaborative states. This month honors Babcock Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Alerts34.9 M573K
Cancer Cases20.3M91K
KUH Cancer Registryca 1950sApr-2017labels*?#3927
Cardiology Labs33.3M364K
Cystic Fibrosis Registry556K222
CF Registry Apr-2017Apr-2017
KUH Billing (O2 via SMS)ca 1980sApr-2017various*
UKP Billingca. 2000Apr-2017
53.2K53.2KFrontiers participant registryJun-2017Apr-2017
210K210KSocial Security Death Indexca. 1962Apr-2017
Diagnoses (IDC9, ICD10)99M.97M
UKP Billingca. 2000Apr-2017
University?HealthSystem??Consortium (UHC)Q4 2008Mar-2017
Lab Results186M476K
KUH/O2/Epicca 2003Apr-2017various*
KUH/O2/Epic (Organized by VA Class)Nov-2007Apr-2017various*
KUH/O2/Epicca 2003Apr-2017various*
Negative1.06M163KKUH/O2/Epicca 2003Apr-2017
Positive18.4K12.9KKUH/O2/Epicca 2003Apr-2017
National Cardiovascular Data Registry1.87M15.5K
National Trauma Data Registry131K2.18K
Nursing Observations1.37B?
Procedure Orders133M727K
KUH/O2/Epicca 2003Apr-2017various*
Procedures (CPT)38.3M.91M
UKP Billingca. 2000Apr-2017#4093, #4100
KUMC Biospecimen Repository?Jul-2017
Visit Details200M1.15M
?Hospital Quality Metrics10.9M135K
University?HealthSystem??Consortium (UHC)Q4 2008Mar-2017various*


Some material in the UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues


No comments.