Posts for the month of August 2017

HERON Alice updates Procedures for multi-site targeted cancer therapy study

In support of the Greater Plains Collaborative (GPC) work on a targeted cancer therapy study, we have filled in gaps in the HERON Procedure folder by updating the CPT hierarchy.

This effort also helps us prepare for SHRINE which will allow users to query data across multiple sites in the GPC network. The HERON Procedures ontology is now in alignment with the Harvard-led SCILHS network.

Need help with HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Alice Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the Greater Plains Collaborative states. This month honors Alice Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Cancer Cases20.7M92K
KUH Cancer Registryca 1950sJun-17labels*?#3927
Cardiology Labs33.9M368K
Cystic Fibrosis Registry560K223
CF Registry Apr-17Jun-17
KUH Billing (O2 via SMS)ca 1980sJun-17various*
UKP Billingca. 2000Jul-17
54.9K54.9KFrontiers participant registryJun-17Aug-17
211.5K211.5KSocial Security Death Indexca. 1962Apr-17
Diagnoses (IDC9, ICD10)101M.98M
UKP Billingca. 2000Jun-17
University?HealthSystem??Consortium (UHC)Q4 2008Jun-17
Lab Results189M481K
KUH/O2/Epicca 2003Jun-17various*
KUH/O2/Epic (Organized by VA Class)Nov-07Jun-17various*
KUH/O2/Epicca 2003Jun-17various*
Negative1.07M165KKUH/O2/Epicca 2003Jun-17
Positive18.7K13.1KKUH/O2/Epicca 2003Jun-17
National Cardiovascular Data Registry1.87M15.5K
National Trauma Data Registry131K2.17K
Nursing Observations1.39B?
Procedure Orders136M734K
KUH/O2/Epicca 2003Jun-17various*
Procedures (CPT)39.4M.92M
UKP Billingca. 2000Jun-17#4093, #4100
KUMC Biospecimen Repository?Jul-15
Visit Details205M1.16M
?Hospital Quality Metrics11.0M140K
University?HealthSystem??Consortium (UHC)Q4 2008Jun-17various*


Some material in the UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues