HERON Lizard improves data quality & aligns data nationally

HERON Lizard improves data quality & aligns data nationally

  • Data is now current through November 2017. There was a lag in data as the health system upgraded EPIC. We will work diligently to keep HERON data as fresh as possible.
  • Data was once again aligned for the national common data model with PCORnet
  • GROUSE is our latest data initiative which is now up and running. GROUSE contains 3 years of Medicare and Medicaid claims data for the 8 states involved in the Greater Plains Collaborative. We have approval to use this data for breast cancer, ALS, and obesity research.

Tips & Tricks: Did you know you can view basic demographics of patients in HERON?

  1. Click Run Query and choose Patient List.
  2. Once it finishes, click the dropdown next to analysis tools and choose Demographics (1 Patient Set).
  3. Under specify data, drag & drop the query on “Drop a small Patient Set here”
  4. Click view results

Systems Engineer Spotlight: Lav Patel joined the Medical Informatics team in December 2016. Since joining, he has played an integral role in supporting all of the software behind HERON. He has also worked to setup the GROUSE environment and is involved in setting up SHRINE. SHRINE will be available to users within the next few months and allows data to be queried across multiple sites in the Greater Plains Collaborative.

Need help with HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR002366).

HERON Lizard Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the Greater Plains Collaborative states. This month honors Lizard Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Cancer Cases21.2M94K
KUH Cancer Registryca 1950sNov-17labels*?#3927
Cardiology Labs36.3M386K
Cystic Fibrosis Registry601K232
CF Registry Apr-17Nov-17
KUH Billing (O2 via SMS)ca 1980sNov-17various*
UKP Billingca. 2000Aug-17
61.1K61.1KFrontiers participant registryJ-17Nov-17
201.8K201.8KSocial Security Death Indexca. 1962Sept-17
Diagnoses (IDC9, ICD10)114M1.01M
UKP Billingca. 2000Nov-17
University?HealthSystem??Consortium (UHC)Q4 2008Nov-17
Lab Results200M502K
KUH/O2/Epicca 2003Nov-17various*
KUH/O2/Epic (Organized by VA Class)Nov-07Nov-17various*
KUH/O2/Epicca 2003Nov-17various*
Negative1.12M172KKUH/O2/Epicca 2003Nov-17
Positive19.7K13.8KKUH/O2/Epicca 2003Nov-17
National Cardiovascular Data Registry2.06M17.0K
National Trauma Data Registry0.93M15.6K
Nursing Observations1.54B?
Procedure Orders146M766K
KUH/O2/Epicca 2003Nov-17various*
Procedures (CPT)44.1M
UKP Billingca. 2000Nov-17#4093, #4100
KUMC Biospecimen Repository?Jul-15
Visit Details217M1.18M
?Hospital Quality Metrics11.6M149K
University?HealthSystem??Consortium (UHC)Q4 2008Nov-17various*


Some material in the UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues


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