Looking for medications prescribed at an outpatient surgery visit? Want to limit patients with an outpatient surgery to those with a specific diagnosis at the time of surgery? Now you can. HERON McMillan Marsh maps IDX and O2 encounters resulting in the ability to link O2 concepts, such as diagnosis and medications, with IDX concepts, such as outpatient procedures, with the same financial encounter temporal constraint.

New data types

• Best practice and medication alerts are accessible in the Alert folder. This folder is in draft mode, and your ​feedback is welcome.
• Emergency Episode is a new field available in the Visit Details/Encounter Type folder. This field allows you to search for patients seen in the emergency department regardless of where their encounters originated or terminated. The Emergency field, also in the Encounter Type folder, represents patients who left the Emergency Department without being admitted to the hospital.

Questions about HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON McMillan Marsh Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​Greater Plains Collaborative states. This month honors the ​McMillian Marsh in Marshfield, WI.

The HERON repository contains approximately 1.68 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

HERON searches would stop running and appear as processing indefinitely once timed out (~180 seconds). HERON Webster release fixes the issue. Once a search times out, it will continue to search in the background. Check the query in your previous queries section to see if the search completes.

This release includes back-end enhancements that will allow for more precise data delivery when requesting data. Searches limited by dates will now provide only data within those date ranges. Improvements to identified data requests are also included. ​Learn more about requesting data.

Questions about HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Webster Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Webster Reservoir.

The HERON repository contains approximately 1.68 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

The HERON Kanopolis release marks the 45th update to HERON. Over the past 46 months, HERON has grown in terms of data and functionality. Temporal Queries, ability to filter searches through modifiers, and improvements to the Timeline tool are just a few examples of new functionality. HERON continues to grow through the ​PCORI ​Greater Plains Collaborative (GPC) work toward standardization of concept hierarchies, and the amount of medical data within HERON has grown from approximately 300 Million in the early releases to over 1.68 Billion medical observations in this release.

HERON Kanopolis new features (concepts):

• IDX Place of Service, new concept that identifies the physical setting for outpatient/clinic-based services (office, clinic, inpatient hospital, outpatient hospital, emergency room hospital and others).

HERON Kanopolis fixes:

• Inability to reuse temporal queries
• Same financial encounter mapping between UHC and O2 data

HERON Kanopolis known issues:

• 8300 UHC to O2 encounter mappings are lost. The HERON team is troubleshooting this issue.
• Flowsheets observations decreased due to data clean-up in O2.

The Kanopolis release includes data through November 2014.

Questions about HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Kanopolis Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Kanopolis Lake.

The HERON repository contains approximately 1.68 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

Don't know the exact reference ranges for a certain lab? No problem since you can search a subset of HERON labs by High, Low, or Normal ranges. To search lab ranges:

• Drag a lab into the search group. The value window will display if a value exists for this lab
• Select By Flag on the value window
• Select Normal, High, or Low
• Click OK and continue building your search.

Note that the value window will not appear for some labs. For example, the influenza laboratory test returns either positive or negative. As a result, you cannot search by value or range.

Questions about HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Verdigris Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Verdigris River.

The HERON repository contains approximately 1.68 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Having trouble creating complex searches in HERON? Seeking support for your grant or proposal? Have funding?

​Medical Informatics Services include searching and data access consultation with the HERON team on an hourly fee-for-service basis.

​request a Medical Informatics consultation or contact MISupport@… to learn more.

As always, the Frontiers Lunch and Learn meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome. See the ​KUMC Calendar for the date of the next clinic.

The HERON Saline release includes data from the KU Hospital EMR, tumor registry etc. through September, 2014.

Having trouble creating complex searches in HERON? Seeking support for your grant or proposal? Note HERON Team offers support for complex searching, data access on an hourly fee-for-service basis.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Saline Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Saline River.

The HERON repository contains approximately 1.6 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

Please note: Clear your browser cache if you receive an error when starting the HERON query tool.

HERON Delaware upgrade to i2b2 v1.7.03 introduces the Temporal Query Tool which allows you to narrow your search by a series of events. For example:

• Define a population
  • create a search for males with hypertension and acute myocardial infarction

• Define events
  • Event 1 is hypertension
  • Event 2 is acute myocardial infarction

• Define temporal relationships of the events
  • Event 1 happens before event 2 by greater than 1 day

• Submit the query.
  • Results include the number of male patients who have had at least 1 acute myocardial infarction diagnosis after a hypertension diagnosis.

HERON issues to note due to recent data clean-up by the O2 team:

• Deceased per Social Security Master Death File decreased due to the removal of certain Social Security Numbers in the EMR. See #2911 for more details.
• Nursing data decreased. See #2955 for more details.

To learn more about temporal querying in HERON, join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Delaware Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Delaware River.

The HERON repository contains approximately 1.6 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

A University HealthSystem Consortium (UHC) format change for Sept 2013 to June 2014 data resulted in the exclusion of a small portion of UHC data from HERON. This issue is fixed with the HERON Wakarusa release.

The 2nd Annual HERON Fishing trip took place on July 28, 2014. Agenda and recorded sessions are ​available. A demo of i2b2 version 1.7 gave the attendees a glimpse of upcoming temporal searching capabilities. HERON is built upon i2b2. Look for this new functionality when HERON moves to i2b2 version 1.7 in the future.

To learn more about HERON or REDCap, join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Wakarusa Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Wakarusa River.

The HERON repository contains approximately 1.6 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Encounter types, such as inpatient, outpatient and emergency, are located within the Visit Details folder. Including or excluding specific encounter types increases your search precision, especially for common items such as an A1C test, by narrowing your search to a specific type of visit. Procedure tool tips are once again visible in this release.

Join us for the ​2nd Annual HERON Fishing Trip, a training workshop on July 28, 2014, 8:00AM - 5:00PM in Dykes Library, Room G026. The workshop will include both classroom and hands-on training covering data types, basic and advanced searching, analysis tools, and future work. ​Register for the event.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Hackberry Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Hackberry Creek.

The HERON repository contains approximately 1.5 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

The HERON Marmaton includes two new data types.

• Cardiology lab data - search for lab orders such as Ejection Fraction, Vascular Ultrasounds, Echocardiogram, and more.
• BMI Percentile - search BMI by CDC defined ranges for the KUMC pediatric population.

Join us for the 2nd Annual HERON Fishing Trip, a training workshop on July 28, 2014, 8:00AM - 5:00PM in Dykes Library, Room G026. The workshop will include both classroom and hands-on training covering data types, basic and advanced searching, analysis tools, and future work. ​Register for the event.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Marmaton Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Marmaton River.

The HERON repository contains approximately 1.5 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

HERON Republican release allows you to limit laboratory searches to a value for tests with a value assigned. If a lab test does not include a value (e.g., testing positive or negative for influenza) the option to limit by value will not appear. This release also introduces outpatient billing service lines and microbiology positive results.

Remember: any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Republican Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors the Republican River.

The HERON repository contains approximately 1.5 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

Exciting changes are coming for the Frontiers Clinical and Translational Informatics Clinic. This walk-in training clinic will be held over the lunch hour on the first and third Tuesday monthly starting May 6th. ​Register ahead of time or drop-in with specific questions or general training for HERON and REDCap.

Where: 3001D Student Center
When: 1st and 3rd Tuesdays monthly from 12:00-1:30 PM
What: Learn about HERON and REDCap

Note: Bring your laptop to follow online. Lunch will be provided to those who ​register for the clinic.

HERON Kirwan Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors Kirwan Reservior.

The HERON repository contains approximately 1.4 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

Discharge disposition information is available in the HERON Arkansas release. New risk pool codes for roughly 1000 patients are added to HERON. The new codes are found in the University HealthSystem Consortium folder.

HERON Arkansas Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors Arkansas River.

The HERON repository contains approximately 1.4 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

Searching clinical services in HERON is no longer limited to inpatient with the introduction of ambulatory clinical services in the Beaver release. To search on a specific outpatient clinical service, go to Visit Details -> Clinical Services -> Outpatient Visits.

HERON Beaver release makes searching negative microbiology data easier with an improved hierarchy of terms.

HERON Beaver Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors Beaver Lake.

The HERON repository contains approximately 1.4 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

The ​Greater Plains Collaborative award from the Patient-Centered Outcomes Research Institute (PCORI) provides $7 million for a project that will establish a new network of nine medical centers in seven states committed to building a data set from electronic medical records that will be used to contribute to new research in the fields of breast cancer, obesity and amyotrophic lateral sclerosis (also known as ALS, or Lou Gehrig's disease).

The principal investigator of the project is Russ Waitman, director of medical informatics at KU Medical Center. The HERON technology developed by the medical informatics team plays a prominent role.

Further reading:

• press release: ​KU Medical Center researchers receive more than $10 million to pursue new translational research projects
• ​Greater Plains Collaborative (GPC) site
• ​GPC Informatics
• full proposal: ​The Greater Plains Collaborative (GPC) proposal (PDF, 96 pages)

HERON Lovewell release facilitates navigation by introducing changes to the abridged Cancer Cases Identifier structure. Date ranges are added to AJCC concepts, and folders are rearranged into an intuitive order. The issue of inaccurate Frontiers Research Participant Registry patient counts ((see #2451)) is resolved. Searches will return the correct patient count when searching with the Frontiers Research Participant Registry concept.

HERON Lovewell Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors Lovewell Lake.

The HERON repository contains approximately 1.3 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

With HERON Toronto we are on newer and faster hardware. Users will likely notice faster query response times. We have also streamlined our monthly process of loading data from various sources into HERON so that we can deliver the data to users faster.

With this release, data in REDCap SQL fields will also be loaded into HERON. The browsing experience for these fields will be indistinguishable from multiple choice fields. To add your REDCap project to HERON, ​register your project after going over the ​directions for readying your project.

Please note: Searches involving Frontiers Research Participant Registry patients will return an incorrect number. See ​#2451 for more information.

HERON Toronto Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors Toronto Lake.

The HERON repository contains approximately 1.3 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

A new folder, Cancer Cases (Abridged), debuts with the Milford release. This folder contains the frequently searched concepts from the Cancer Cases folder. Advanced searchers can still search the entire tumor registry in the unabridged folder.

The Milford release marks the 8th REDCap database integrated into HERON. When you add a REDCap patient registry to HERON, you enhance your HERON searching capabilities while at the same time enhancing your REDCap registry.

Integration of REDCap project data into HERON is driven by our desire to empower the researcher to:

• look at a richer data picture of their project population.
• look for disparities in data in the EMR versus the data in REDCap projects.

Since July 2012, REDCap projects that model breast cancer, Alzheimer's, Sepsis management registries among others have been integrated into HERON.

To add your REDCap project to HERON, ​register your project.

HERON Milford Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors Milford Lake.

The HERON repository contains approximately 1.3 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Outstanding Problems/Defects/Issues

Integration of REDCap project data into HERON is driven by our desire to empower the researcher to:

• look at a richer data picture of their project population.
• look for disparities in data in the EMR versus the data in REDCap projects.

Since July 2012, REDCap projects that model breast cancer, Alzheimer's, Sepsis management registries among others have been integrated into HERON. In this post, we briefly summarize how you can get your REDCap project ready for integration into HERON.

Make sure you document the MRN for patients in your project.
REDCap data related to a patient is linked to the rest of their EMR data using their Medical Record Number (MRN). Please make sure you record the MRN accurately for the patients with all the leading zeros. Patients missing valid MRN will not be loaded into HERON.

Verify that no two records in your REDCap project have the same MRN.
If two records(i.e. patients) have the same MRN, then your REDCap project should be modeled as a longitudinal project. If you have questions regarding longitudinal projects, please watch the relevant video on ​https://redcap.kumc.edu/index.php?action=training. If you need further help changing your project to be longitudinal, contact us.

Mark the fields containing PHI as "Identifiers"
If you are recording PHI in a field in your REDCap project, please make sure you have marked that field as an identifier. You can do that from online designer. Once a field has been marked as an identifier the data in it will not be loaded into HERON so that we can comply with our "de-identified data only" policy.

• One exception are date fields which will be randomly shifted so that they are de-identified.
• For more information on identifiers in your data refer: ​http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/De-identification/guidance.html

Check the REDCap field types in your project
Right now we only pull the following REDCap field types into HERON:

• text fields with integer, float or date validation. We ignore text fields without any validation.
• Radio, checkbox, select(dropdown), yesno fields

Make sure the data you want to look at in HERON is in those fields. If not please contact us and we can try to expand this list. We do not load data from unvalidated text fields due to the de-identification challenges.

Verify the user rights to your project
Currently access to your REDCap data in HERON is limited to only users who have permissions to it in REDCap.

Project Status: Production
Finally, make sure your project has been moved to Production. This is a good practice for REDCap projects as it helps protect the project structure and data against inadvertent changes.

Our releases are around the middle of a month
For your project to be part of the next monthly release, the project has to be ready by the first week of a month. We will first stage the data and will contact you if you we have any obvious issues that we need your help in resolving.

Request to integrate your project
Please complete the ​REDCap-to-HERON Request so that we can integrate your project into HERON. Choose options HERON and then REDCap to HERON Request.

Contact us
If you have any questions contact us at misupport@….

Over the past 32 releases, HERON grew in data, functionality, and use. New data types include REDCap projects, Biospecimen Repository, Tumor Registry information, and much more. In response to this increase, the Medical Informatics team lead the ​HERON Fishing Trip, an extended training workshop in August 2013. This two day event consisted of hands-on and classroom trainings with attendance both in person and online.

Since that workshop, monthly searches have surpassed 1000, ​Frontiers Research Participant Registry requests increased, and clinics are steadily attended. Researchers, study coordinators, students, and administrators from multiple areas of KUMC and KU Hospital search HERON. Thirty-two releases after the initial launch and HERON continues to grow.

The Solomon release includes clinical data through September 2013.

HERON Solomon Contents Summary

This month, our tour of ​rivers and lakes in Kansas honors Solomon River.

The HERON repository contains approximately 1.25 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

When you request data from HERON you can receive the data via a REDCap project. The data will be pivoted into a user-friendly format and available in REDCap CRFs. The data will reside on REDCap servers cutting down the use of email in sharing data.

Data from University of Kansas Alzheimer's Disease Center(KU ADC) REDCap project is now part of HERON. This project has a richly characterized cohort of over 300 Alzheimer's patients. You can access this data only if you have the permissions to the related REDCap project. Please contact Dr.Jeff Burns (jburns2@…) if you would like to look at these patients in HERON.

HERON is now on i2b2 v1.6.09. Queries including concepts with symbols like < are now working.

General fixes in this release include:

• HERON databases are now running on a newer version of Oracle.
• UHC data is now under the folder University HealthSystem Consortium
• HERON help button is functional again.

Note: The latest University HealthSystems Consortium (UHC) is current through June 2013.

This month, our tour of ​rivers and lakes in Kansas honors Chikaskia.

The HERON repository contains approximately 1 billion real observations from the hospital, clinics, and research systems: