HERON Lizard improves data quality & aligns data nationally

• Data is now current through November 2017. There was a lag in data as the health system upgraded EPIC. We will work diligently to keep HERON data as fresh as possible.
• Data was once again aligned for the national common data model with PCORnet
• GROUSE is our latest data initiative which is now up and running. GROUSE contains 3 years of Medicare and Medicaid claims data for the 8 states involved in the Greater Plains Collaborative. We have approval to use this data for breast cancer, ALS, and obesity research.

Tips & Tricks: Did you know you can view basic demographics of patients in HERON?

1. Click Run Query and choose Patient List.
2. Once it finishes, click the dropdown next to analysis tools and choose Demographics (1 Patient Set).
3. Under specify data, drag & drop the query on “Drop a small Patient Set here”
4. Click view results

Systems Engineer Spotlight: Lav Patel joined the Medical Informatics team in December 2016. Since joining, he has played an integral role in supporting all of the software behind HERON. He has also worked to setup the GROUSE environment and is involved in setting up SHRINE. SHRINE will be available to users within the next few months and allows data to be queried across multiple sites in the Greater Plains Collaborative.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR002366).

HERON Lizard Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​Greater Plains Collaborative states. This month honors ​Lizard Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Dora includes updates to the Frontiers Research Participant Registry information. Frontiers is a recruitment registry of patients at KUMC who have agreed to be contacted for research. Researchers are able to search for patients in the registry who meet their clinical inclusion and exclusion criteria. To search for these patients, look in the demographics folder under "Frontiers Research Participant Registry." Patients are listed as "Do Not Contact," "Ok to Contact," and "Unknown to Contact." To search for patients who have signed up for the registry, only pull over the term "Ok to Contact." "Unknown to Contact" indicates that they have not been approached about participating in the Frontiers previously.

The trauma registry data has been updated to include data from 2006-2016. Users will find this data in the main HERON hierarchy under the folder "Trauma Registry." Trauma Registry modifiers are also included in the procedure folder under the ICD9 and ICD10 procedure hierarchies.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Dora Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​Greater Plains Collaborative states. This month honors ​Dora Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

With HERON Wolf it is now possible to get UHC Total and Direct cost associated with Ambulatory and Inpatient encounters in an identified DUA Request.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Wolf Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​Greater Plains Collaborative states. This month honors ​Wolf Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

In support of the Greater Plains Collaborative (​GPC) work on a targeted cancer therapy study, we have filled in gaps in the HERON Procedure folder by updating the CPT hierarchy.

This effort also helps us prepare for SHRINE which will allow users to query data across multiple sites in the GPC network. The HERON Procedures ontology is now in alignment with the Harvard-led ​SCILHS network.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Alice Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​Greater Plains Collaborative states. This month honors ​Alice Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

The HERON Ashburger release helps KUMC prepare for the quarterly PCORNet CDM data refresh and includesthefollownoteworthyupdates to HERON:

• HERON base hierarchy folders have been renamed for clarity and consistency
• Tooltips included on base folders with description of hierarchy
• Improved fidelity of inpatient encounters which span both UHC and IDX data

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Ashburger Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​Greater Plains Collaborative states. This month honors ​Ashburger Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Babcock release includes the addition of data from KUMC entered into the Cystic Fibrosis registry. You may query on terms recorded in the registry along with information from a patient's medical record.

Another enhancement is the update of folder names to be easier to navigate. University HealthSystem? Consortium has changed their name to Vizient. Inpatient quality data can now be found in the folder titled "Vizient (formerly UHC)".

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Babcock Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Babcock Lake in Nebraska.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Spitznogle release helps KUMC prepare for upcoming PCORNet CDM data refresh and includes the follow noteworthy updates to HERON:

• New encounter type facts related to outpatient encounters.  The Encounter facts are available in the “Visit Details” folder.
• Additional ICD10 Diagnoses brought in from our UHC data source.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Spitznogle Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Spitznogle Lake in Iowa.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Wiese Slough includes a subset of de-identified free-text physician notes. These notes can be found in the folder "reports." For notes that are available in HERON, you can search to see if a patient has a specific note type in their chart or you can look for specific text within the note. For example, ED Notes are available and you can limit your search to find patients who have diabetes recorded in the ED note.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Wiese Slough Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Wiese Slough in Iowa.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

A derivative of the HERON Repository is used for nation-wide patient-centered research in the form of a ​PCORNet Common Data Model (CDM) datamart. This datamart underwent a second cycle of extensive quality review in December. The HERON Cornelia release benefits from this review.

HERON Cornelia further enhances prescription fill information with Amount and Day Supply. The folder "Outpatient Dispensed Medications" now includes modifiers for "Amount" and "Day Supply" which can be use in tandem with existing prescription fill modifiers in a HERON search.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Cornelia Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Quaker Mill in Iowa.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Quaker Mill has an exciting enhancement to include prescription fill information from surescripts. You can now search to see if patients have filled their prescribed outpatient medication prescriptions. The folder "outpatient dispensed medications" includes the modifiers claim, fill, and unknown. Claim indicates when the prescription is sent to the insurance and fill indicates a patient has actually picked up their prescription from the pharmacy.

Previously, CPT codes from the IDX billing system were included in HERON. This release now includes CPT codes from the hospital's O2 billing system!

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Quaker Mill Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Quaker Mill in Iowa.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Icaria includes improved precision for procedure order date/times.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Icaria Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Icaria Lake in Iowa.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Geode includes inpatient ICD10 procedures that have been in use since Oct 2015.

Need help with HERON? ​Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Geode Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Geode Lake in Iowa.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Coralville includes new i2b2 Modifiers for Medications, which allow for refined medications queries constrained by frequency, quantity and refill amount. Additionally these modifiers are aligned with the ​GPC ontology, as well as ​SCILHS, providing multi-site support and validation for related HERON queries.

Need help with HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Coralville Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Coraville Lake in Iowa.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

HERON Sunset includes Clinical Service Department information, which allows you to limit your search to a specific clinic. For example, searches can be limited to include only patients seen at Mid-America Cardiology (MAC). Clinical Service Department data is from the electronic medical record, O2, while the data in the Clinical Services folder is derived from the billing system, IDX.

Need help with HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Sunset Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Sunset Lake in Wisconsin.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

HERON Rolling Stone release introduces de-identified flowsheet notes. When pulling a flowsheet note into a group within your search, you will be prompted to enter a value. Selecting no value will search for any patient with a note documented. To search for a string of text, enter it in the value box. These notes are de-identified so you cannot search on a date, name, or other PHI element within the note.

Rolling Stone also includes alert status to see how often an alert is fired or overridden.

Need help with HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Rolling Stone Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Rolling Stone Lake in Wisconsin.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems:

Notice

Some material in the ​UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Misuse of the Limited Access Death Master File, NTIS, U.S. Department of Commerce data is subject to penalties under provisions of 15 CFR § 1110.200.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

• date shifting, part of our DeIdentificationStrategy
• age searching (#158)

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

No results

Outstanding Problems/Defects/Issues

Ticket	Summary	Keywords
#2301	constraining birth-date by date doesn't work - HERON uses sysdate for start_date in demographics	public-web wrong-results training
#2617	Saved searches not updated in REDCap projects after Arkansas release	public-web redcap-to-heron

New data types in the HERON Paradise release include registry and study enrollment data.

• Study enrollment information: Want to find out how many people in your patient set are already enrolled in a study at KUMC? Go to the Research Enrollment folder. You can search by status for patients actively enrolled, pre-enrolled and more. Additionally, you can search the status in a specific trial.
• Trauma registry: Search for patients seen at the KU trauma department. This is the first phase for incorporating this registry into HERON, and future work will include incorporating the outstanding trauma registry fields.

This release includes enhancements to the tumor registry and diagnosis fields.

• Labels added for site specific factors: Prior to this release, searching the CS Site Specific Factors within the tumor registry required an understanding of the SEER coding structure. This release replaces the numeric codes with text labels making it easier to search items such as ER positive breast cancer patients.
• Medical History: Previously HERON included any diagnosis added to the medical history field. In this release, the medical history diagnosis is limited to only the most recent recording of medical history.

Save time submitting your next identified data request by searching for team members by your approved IRB number. Searching by IRB number as opposed to a team member name will avoid a request denial due to unauthorized team members listed on the data request.

Feedback on new data sources or enhancements are always welcome.

Need help with HERON? Join the Frontiers Lunch and Learn which meets the 1st and 3rd Tuesdays of each month from 12:00 - 1:30 PM in room 3001D Student Center. ​Register in advance if possible but drop-ins are welcome.

Any publication that results from a project utilizing HERON should cite grant support (CTSA Award # UL1TR000001).

HERON Paradise Contents Summary

Our tour of rivers and lakes expands to include bodies of water within the ​​Greater Plains Collaborative states. This month honors ​Paradise Lake in Wisconsin.

The HERON repository contains over 2 billion real observations from the hospital, clinics, and research systems: