HERON Chikaskia release introduces HERON DUA to REDCap & KU ADC data

When you request data from HERON you can receive the data via a REDCap project. The data will be pivoted into a user-friendly format and available in REDCap CRFs. The data will reside on REDCap servers cutting down the use of email in sharing data.

Data from University of Kansas Alzheimer's Disease Center(KU ADC) REDCap project is now part of HERON. This project has a richly characterized cohort of over 300 Alzheimer's patients. You can access this data only if you have the permissions to the related REDCap project. Please contact Dr.Jeff Burns (jburns2@…) if you would like to look at these patients in HERON.

HERON is now on i2b2 v1.6.09. Queries including concepts with symbols like < are now working.

General fixes in this release include:

  • HERON databases are now running on a newer version of Oracle.
  • UHC data is now under the folder University HealthSystem Consortium
  • HERON help button is functional again.

Note: The latest University HealthSystems Consortium (UHC) is current through June 2013.

This month, our tour of rivers and lakes in Kansas honors Chikaskia.

The HERON repository contains approximately 1 billion real observations from the hospital, clinics, and research systems:

Observation Patients Source Go-Live Snapshot Issues
Allergy 442K 210K
KUH/O2/Epic Nov 2007 August 2013 various*
Cancer Cases 10.2M 69.7K
KUH Cancer Registry 1950s August 2013 labels*
Demographics 19.0M 2.00M
KUH Billing (O2 via SMS) 1980s August 2013 various*
UKP Billing 2000 August 2013
18.8K 18.8K Frontiers participant registry Jun 2009 August 2013
189.9K 189.9K Social Security Death Index 1962 August 2013
Diagnoses (IDC9) 50M 701K
KUH/O2/Epic Nov 2007 August 2013 various*
UKP Billing 2000 August 2013
University HealthSystem Consortium (UHC) Q4 2008 June 2013
History 19.4M 337K
KUH/O2/Epic Nov 2007 August 2013
Lab Results 93M 318K
KUH/O2/Epic 2003 August 2013 various*
Medications 102M 346K
KUH/O2/Epic (Organized by VA Class) Nov 2007 August 2013 various*
Microbiology 2.71M 24.2K
KUH/O2/Epic 2003 (?) August 2013 various*
Nursing Observations 659M ?
KUH/O2/Epic Nov 2007 August 2013 various*
Procedure Orders 132M 482K
KUH/O2/Epic 2003 (?) August 2013 various*
Procedures (CPT) 11.1M 608K
UKP Billing 2000 August 2013
REDCap 266K 4.51K
REDCap July 2011 August 2013
Reports/Notes 46.7M 322K
KUH/O2/Epic ? August 2013
Specimens 76.6K 5.91K
KUMC Biospecimen Repository ? August 2013
Visit Details 33.7M 586K
KUH/O2/Epic Nov 2007 August 2013
Hospital Quality Metrics 5.60M 77.3K
University HealthSystem Consortium (UHC) Q4 2008 June 2013
All 1.28B


Some material in the UMLS Metathesaurus is from copyrighted sources of the respective copyright holders. Users of the UMLS Metathesaurus are solely responsible for compliance with any copyright, patent or trademark restrictions and are referred to the copyright, patent or trademark notices appearing in the original sources, all of which are hereby incorporated by reference.

Beta Disclaimer

We are providing this early access to obtain feedback from you, the research community. While we are actively working on validating the data loaded into the system with hospital and clinic technical staff, there may be problems with our translation of data from our source systems (HospitalEpicSource and ClinicIdxSource) into HERON.

Please email us at heron-admin@kumc.edu if you discover information you believe may be erroneous.

We are actively working on enhancing the types of data included. Stay tuned to our roadmap to track progress toward upcoming releases.

Various Issues Still Apply

Keep in mind the issues noted in the original HERON beta notice, including:

Enhancements and Problems/Defects/Issues Addressed in this Release

Due to in-progress trac access policy issues, this section may be blank for a time.

Searching for some concepts (e.g. VANCOMYCIN(<5KG/NICU) INJ 5MG/ML) results in error
visit-oriented REDCap CRFs for HERON Data Use Requests (DUA)
Delete Concept in I2B2 web app naively deletes the first occurrence of the concept, not the one selected
dragging ChrisMackaySolidTumorProgressed from shared folder to query tool hangs

Outstanding Problems/Defects/Issues


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